By Judy Peterson
Advance care planning is like planning a road trip to an unfamiliar destination. People approach mapping their route in different ways, but your trip can be made more comfortable by planning ahead. An Advance directive is a map detailing where you want your health care “to go,” in the event you are unable to voice your own wishes.
Do you have a written plan stating what kind of health care treatments you would or would not want if you could not speak for yourself?
Death comes in its own way, in its own time. None of us can predict when our final day will arrive. Advance directives are not only for the elderly; in fact, anyone 18 years and older should complete an advance directive. By completing an advanced directive, people and their families are able to have tough conversations well before the directive is actually needed.
What is an advance directive?
It is a written statement of your wishes, preferences, goal and values regarding end-of-life health care decisions. It is only used if you are seriously ill and unable to speak for yourself. There are two components to the directive.
- Naming of a medical (health care) power of attorney
- Living will
What is a surrogate or health care agent, and who do I choose to take on that role?
A surrogate or health care agent, also referred to as a health care proxy, is a health care advocate for a person if he or she is unable to make decisions for him or herself.
When choosing a surrogate or health care agent you should consider someone who:
- Knows you well
- Will remain calm in a crisis
- Is not afraid to ask questions and advocate for you to your medical team
- Can reassure and communicate with your loved ones
- Understands how you would make the decisions if you were not able to
What is a living will?
A living will is a portion of documentation where a person’s explanation his or her wishes for end-of-life care can be incorporated. Living wills can be extensive, or quite simple, and should include an explanation of the individual’s values, wishes, preferences and goals for end-of-life care. There should be a description of what, if any, life-sustaining treatment you would want, including artificial nutrition and hydration (feeding tube), cardiopulmonary resuscitation (CPR), do-not-resuscitate order (DNR), palliative care and hospice care.
When the documentation is complete, what should I do with it?
You must include your signature on all documentation, and your signature must be either notarized or witnessed. In North Dakota, either option is sufficient to legalize the document. The “Five Wishes” document is recognized in many states and does not require notarization, but your signature must be accompanied by two witness signatures.
You should retain the original version of the completed and signed documentation in a safe, accessible location within your home. Copies should be made for each of your health care decision makers and your health care institution (for their electronic medical record). It is not recommended to keep the only version of the document in a safety deposit box at the bank. This information should be readily available for review when the need arises.
If any of the following situations occur, your document should be updated:
- When there is a divorce
- When a family-related death has occurred
- When chronically ill, or there is a change in your health status
- During every decade of life
- If you receive a new, life limiting diagnosis
If I have a power of attorney, do I need an advance directive?
Yes, the power of attorney (POA), or conservator, is normally associated with someone who takes care of financial matters for an incapacitated person. The advance directive for health care only covers health care decision making.
What is a POLST?
A physician order for life-sustaining treatment (POLST) is intended to be completed alongside a patient’s physician to guide the actions of emergency medical personnel (e.g., whether or not to perform CPR). It is a medical order that gives patients more control in their end-of-life care. A POLST must be signed by a doctor or other medical professional after having a conversation about end-of-life care with the patient. It is intended for people who have a serious illness—at any age—and usually completed when it is anticipated the patient has a year or less to live.
Currently, a POLST does not exist in the state of North Dakota; however, Honoring Choices North Dakota is currently developing a standardized medical order form that represents and individual’s preferences for end-of-life care. At this time, it is work in progress and will eventually become a North Dakota physician order for life sustaining treatment. Currently, the state of Minnesota has a POLST in use that was developed as part of Honoring Choices Minnesota.
Where do I find information on advanced care planning or an advance directive form?
Be bold. Have the conversation and document your wishes, you’ll be glad you did. If you have questions, please contact us at (800) 237-4629 or firstname.lastname@example.org.
Judy Peterson is a clinical education supervisor at Hospice of the Red River Valley.
About Hospice of the Red River Valley
Hospice of the Red River Valley is an independent, not-for-profit hospice serving all, or portions of, 29 counties in North Dakota and Minnesota. Hospice care is intensive comfort care that alleviates pain and suffering, enhancing the quality of life for patients with life-limiting illnesses and their loved ones by addressing their medical, emotional, spiritual and grief needs. For more information, call toll free 800-237-4629, email email@example.com or visit www.hrrv.org.