Aug 26

Ride the Red for Hospice on September 13!

Ride the RedFlint Communications invites you to gather your friends and family and join us for the
14th Annual Ride the Red to benefit
 Hospice of the Red River Valley!

When
Saturday, Sept. 13, 2014
Registration opens at 9 a.m.; the bike ride begins at 9:30 a.m.

Where
This non-competitive bike ride begins and ends at Fargo’s Trefoil Park, located at 1321 Elm St. N. Participants will follow the Fargo-Moorhead Recreation Trail; the mid-point is Lindenwood Park. The route is approximately 13 miles.

Rain Date
Saturday, Sept. 20, same time, same place.

The fee to register is $25, and all proceeds directly benefit Hospice of the Red River Valley. Children 12 and under ride FREE with a paid adult. Register by August 30 to guarantee your free t-shirt! In addition to the bike ride, attendees will enjoy coffee and breakfast pastries, and a chance to win door prizes, including a new bike!

Registration
Click here to register online.

“Like” the Ride the Red Facebook page to see updates and the bike trail map. Invite your friends and family to join the event on Facebook, too!

We hope to see you there! Let’s Ride the Red!

 


 

 

 

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/08/26/ride-the-red-for-hospice-on-september-13/

Aug 12

Hospice Nurse Practitioner, On Compassion & Kindness

Michelle Cooley

Michelle Cooley, Hospice of the Red River Valley nurse practitioner

We are all the same inside, and we all have the same basic needs—no matter our culture, age or road to travel. It’s a simple sentiment, but one in which Michelle Cooley, Hospice of the Red River Valley nurse practitioner, lives to the “T.” As a mother of three, grandmother of two, former foster parent and international exchange student host family mother, Michelle understands acts of love, compassion and kindness are far more rewarding long-term than the initial benefits they reap.

“It’s always been my belief that we can make the world a better place by helping one child or one person at a time,” Michelle explained. “I want to help out any way I can.” The calling to make a difference resonates not only in Michelle’s personal life, but also in her career choice—nursing.

For more than 30 years, she worked in the Grand Forks health care system as a registered nurse, then a nurse practitioner. Additionally, Michelle worked as an assistant clinical professor at the North Dakota College of Nursing in Grand Forks during much of the same time. After having raised her children with her husband, Michelle made the move to hospice care a few months ago when she joined Hospice of the Red River Valley. “It’s always something I wanted to do,” she explained. “I want to be there to help patients live the fullest life possible until the end.”

In her new role, Michelle travels the more than 25,000 square miles that encompass Hospice of the Red River Valley’s service area for face-to-face visits with patients. She also works closely with Hospice’s medical director to collaborate on comfort and end-of-life care for patients and provides expert guidance to Hospice nursing staff regarding patient care.

“I feel I can make a difference in the lives of patients and their families by being caring, compassionate and supportive,” Michelle said. “We’re all going to be there some day, and no matter if it’s just something little, or a larger issue the patient faces, I want to advocate for them—and help be their voice.”

During her short time at Hospice, it’s become apparent to Michelle that Hospice is the perfect fit, because like her, the other Hospice staff she has met takes their work very seriously. “I can see through everyone I’ve met at Hospice so far—even during orientation—it’s all about the patient and family,” Michelle explained. “It’s not a job to them [hospice staff]; it’s their mission. It takes a special kind of person to work in end-of-life care.”

Based on the sum of her experiences in nursing and with Hospice so far, Michelle is thoroughly excited about the months to come as she becomes more immersed in her role, working closely with patients. “It’s [hospice care] a good reminder to really appreciate what you might otherwise take for granted,” she said. “Dying is such a natural part of living, and I want to make that experience as comfortable as possible for the patient and the patient’s family while advocating for both.”

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/08/12/hospice-nurse-practitioner-on-compassion-kindness/

Jul 29

Every Gift Counts: Donations to Hospice Patients Provide Immeasurable Support

Jane BartholomayBy Jane Bartholomay

If you knew you had just a few months left to laugh, love and live, how would you choose to spend your final days or weeks? For some faced with a terminal illness, the choice is clear—comfortably and surrounded by loved ones, which means accepting hospice care.

What services does Hospice provide?
When that decision is made—to transfer from curative care to comfort care—and Hospice of the Red River Valley becomes involved, the meaningful work of supporting that person’s end-of-life wishes takes form. A detailed, patient-specific plan of care is designed by a team of hospice care specialists, including a registered nurse (RN), licensed social worker, chaplain and volunteer coordinator. All services, equipment and medication related to the individual’s terminal diagnosis become a part of the compassionate, end-of-life care the person deserves.

In addition to caring for each patient, Hospice supports the patient’s family members through caregiver education—teaching caregivers how to provide direct care for their loved ones—and grief support services for up to 13 months after a death. Grief support is provided based on each person’s individual comfort level and may include one-on-one visits, phone calls and educational materials. Hospice of the Red River Valley also offers support groups open to the communities we serve.

Why does it matter?
We need you. While some of our services are reimbursed through Medicare, Medicaid or private insurance, Hospice of the Red River Valley cares for anyone who meets the medical guidelines for care, regardless of insurance coverage, ability to pay or distance from a major city. As a not-for-profit organization serving 29 counties in North Dakota and Minnesota, patients are cared for in the setting of their choice—wherever they call home, including private residences, assisted living facilities, nursing homes and hospitals.

In 2013, we cared for an average of 278 patients each day—many of whom resided in rural areas. Donations and community support make our work possible—ensuring everyone who qualifies for hospice has access to care that can lead to a more comfortable life and more moments with loved ones. Deliberate acts of generosity also provide much needed support for families during their most difficult times.

Every gift, your gift—no matter its size or form—provides immeasurable support for the care and aid of patients and their families throughout our service region, helping each person live the last months and weeks to the fullest surrounded by those who matter most.

How can I help?
Contributions to Hospice of the Red River Valley come in many forms, and all gifts to Hospice of the Red River Valley are tax deductible, as determined by the law.

There are so many types of gifts you can give:

We are often reminded of how the care provided during difficult times has touched the lives of those involved. Recently, we received this note from a family member whose mother was served by Hospice of the Red River Valley. “Thank you so much for the gentle and compassionate care given to our mother. Words cannot describe the depth of our gratitude. You were always there when we needed you.”

For more information on opportunities to support Hospice of the Red River Valley, please call (800) 237-4629, email or visit our website.

Jane Bartholomay is a development officer at Hospice of the Red River Valley.

 

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/07/29/every-gift-counts-donations-to-hospice-patients-provide-immeasurable-support/

Jul 15

Caregiving 101

Sharon Dardisby Sharon Dardis

Editor’s note: Hospice of the Red River Valley is fortunate to have wonderful guest bloggers contribute to our blog. This blog is written by Sharon Dardis, former Hospice of the Red River Valley employee, and republishing or reprinting any part of this article, The Caregiver Bill of Rights or Top 10 List is prohibited without prior written permission by the author, Sharon Dardis.

This story has a happy ending, and retelling it still feels like therapy. Four years ago, I was thrust into the role of caregiver for my husband who became suddenly, critically ill. I learned hard lessons about advocating and caregiving. Just a month short of retirement, and claiming he had no warning signs, Stan was struck with a serious bout of sepsis. He nearly died. Afterward, he said he thought his aches and pains were “pending retirement.” Since I’m a nurse, I felt somehow I’d failed him. I should have seen or suspected something. The next four months of my life as a caregiver began early in the morning of April 1, 2010, with a call to 911. When I called our kids later that day to say their dad was in ICU, our son asked, “April Fools, right, Mom?” 

Conscious Caregiver
As a nurse, I always thought I knew the ropes—navigating the maze of medical care with a loved one would be easier for me because of my experience. I seriously think it may have made the experience more difficult. Early on, a friend and fellow nurse suggested I keep a journal, recording not only my feelings but also information, names, lab results, appointments, who called, who said what, etc. It was good advice; it helped me to not feel completely out of control. (I still flip through it occasionally, reprocessing the experience.) But I think keeping a journal made the medical community nervous. There I sat, notebook in hand, pen poised as the latest specialist recounted the newest findings. It came in handy, and in several cases, was helpful, in Stan’s recovery (and my own mental stability). I also recorded my thoughts or things Stan said or did.

Recovery
We were lucky. After three different hospitals, a second ambulance ride, scans, massive antibiotics, and finally, major surgery, I took Stan home to recover with another two months of IVs and therapy. He had experienced good care. His recovery complete, he dove into his “new life,” suffering no ill effects. Today, he’s healthy and, like me, very, very grateful. 

He remembers little of those intense four months. Only a month into it, he did attend his retirement party. Fiercely proud and not wanting to go unless he could “stand tall and be coherent,” (but still in significant pain) his doctor commented, “You want both?” We stood together that day, addressing his guests with a short talk titled, “Top10 Things We Would Have Rather Not Learned This Month.” He let me help him prepare these short remarks, which was very much unlike him. It was not how he had planned his retirement send off. We took turns presenting; it felt surreal. It took another two months before Stan was fully himself again. Like all caregivers, I believe I came away with some hard lessons learned. 

Caregiver Bill of Rights
After a particularly bad day, I left Stan’s hospital room in tears; actually, I was hysterical. I knew I was exhausted and worried, but I was also frustrated and sad, and writing helped express my concerns. I pounded out my own “Caregiver Bill of Rights,” taking into account some of the experiences I had as the “responsible caregiver.” Stan was my husband; I was his advocate. It never felt easy and rereading what I’d written later, it was pretty clear. This kind of caregiving was complicated.

I suspect if every caregiver on the planet wrote their own bill of rights for caregivers, there would be as many different versions as there are people. Since each caregiving situation is different and every person is up against a unique set of problems, there are a million ways to approach the topic of the self-care and preservation of those who provide care to loved ones.

Google “Bill of Rights for Caregivers,” and you’ll find many affirming approaches to this proposition. Jo Horne presents a helpful list of reasons to believe caring for ones’ self is “not an act of selfishness.” She reminds us that to survive, we need to first take care of ourselves. Not knowing her story, nor who she might have cared for, I read between the lines. She understands, I suspect from experience, that to stay a strong and effective caregiver, one needs to take good care of oneself.

I think many of these well-worded and carefully constructed “documents,” meant to help instruct and support others in the art of caregiving, are born of personal trials; hard-won, hands-on, days, weeks, months, years of attending to those who need us. It’s never an easy road.

Sherri Snelling, CEO of Caregiving Club and author of “A Cast of Caregivers” has another version, one that speaks not only to self-care and preservation but also beyond, to what to we should be able to expect from the health care team, employers, our family and friends, as well as public, private and even national resources. 

You’re Not Alone
I never dreamt I’d be in a situation that would prompt me to craft my own Caregiver Bill of Rights. I suppose it’s like writing a letter in a fit of passion; sometimes it’s better to wait before you send it out or maybe never send it at all, tear it up or bury it in some drawer. But in my case, my own Caregiver Bill of Rights was written just as I came to the end of my rope. Tears streaming down my face, I was forced to admit, even though I was a nurse, or maybe because I was, I felt powerless and exhausted. Once I pounded out my thoughts, took a breath and thought about it, it felt good. I felt better. I suspect I’m not alone. 

What follows is what I wished for as a caregiver; my own Caregiver Bill of Rights. Rereading it, I think what I wanted most was to be heard and acknowledged. I’ve left my version mostly unedited, as a reminder of that difficult time. Caregivers are fragile. A smile, a kind word goes a long way in helping ease what is often a long and difficult road. Three cheers for caregivers everywhere! 

Caregivers Bill of Rights: Regarding Clinic Visits, Home Care and Hospitalization of Loved Ones
By Sharon Dardis, May 2010

  • Within legal and confidentiality parameters, I have the right to act as an advocate for my loved one’s health care and medical treatments.
  • I have the right to ask questions on his/her behalf, to be with them during exams and cares and to take informed notes, including test results and procedures, to be a more effective, informed caregiver, without fear of intimidation from medical and/or support staff.
  • I have the right to clear explanations with understandable instructions, including homecare before discharge from the hospital setting.
  • I have the right to have caregiving questions answered promptly when I call the doctors and nurses.
  • I have the right to not be intimidated or put down for my advocacy role, by gatekeepers for the doctors, nurses, nursing assistants, clinic appointment staff or other medical personal.
  • As the primary caregiver for my loved one, I have the right to respect, and even compassion, from all medical staff and personnel, including non-medical personnel.
  • I have the right to expect courteous and kind attention from all health care workers as I advocate for my ill loved one. I have the right to expect the best medical care available for my loved one. I have the right to request second opinions or transfers if the care for my loved one seems inadequate or substandard.
  • I have the right to be with my loved one as long as it doesn’t impede the tasks of those caring for him or her.
  • In so much as caregiving demands both physical and emotional energy, I have the right to a championing of my role from medical personnel, to empower me and my cares, rather than being given an impression I am somehow intruding or in the way.
  • I have a right to wear a big button that says, “I am a CAREGIVER! Caregiving Counts!” to remind people of the important role I play in my loved one’s recovery. (The downside of this is that, really, every one of us is a caregiver in one way or another. We should all be wearing “treat me kindly” buttons!)

Sharon Dardis, RN, BSN, is a former Hospice of the Red River Valley employee. Beginning as a volunteer, she later became a hospice staff nurse and bereavement specialist. Sharon developed and facilitated “Kids Grieve, Too,” for Hospice, a support and educational program for young people experiencing the death of a loved one. Moving to the Twin Cities in 1993, she helped develop and coordinate “Kids In Grief” another children’s grief support group in Stillwater, Minn. Now retired, Sharon is a board member of the Minnesota Coalition for Death Education and Support and also edits their quarterly newsletter, “Coalition News.” In 2000, Sharon coauthored and published, “As I Journey On: Meditations for Those Facing Death.” The proud mother of three and grandmother of eight, Sharon spends her time with husband, Stan, in St. Paul, Minn., and Alpine, Wyo.

Editor’s note: Republishing or reprinting any part of this article, The Caregiver Bill of Rights or Top 10 List is prohibited without prior written permission by the author, Sharon Dardis.

 

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/07/15/caregiving-101/

Jun 30

A Brit with a Big Heart: One Volunteer’s Experience with Hospice

Hazel MeidlingerMore than 4,000 miles away and 50 years ago, while growing up in Leicester, England, Hazel Meidlinger couldn’t have imagined the significant role Hospice would play in her life. She was familiar with the concept of hospice care because of its English roots, a movement started by Dame Cicely Saunders in 1948. “I heartily believed in hospice long before it was started in America because I recognized the importance of that type of care at the end of life,” Hazel explained. “I’m very much in-tune with it.” But as she busied herself with establishing a family, Hazel didn’t think much about hospice until many years later when a volunteer opportunity arose.

A Family Formed
While still in England, Hazel met the love of her life, Harold, while he was stationed there for the U.S. Air Force. Soon after they met, the couple married and welcomed the first of four children into their family. In 1955, Harold completed his service in the Air Force, and the Meidlinger family transplanted to America, making Council Bluffs, Iowa, their first home abroad. In the early 70s, the family, which had increased by three more girls, moved to Fargo, N.D., for Harold’s work, and Hazel continued to be a stay-at-home “mum”—raising their children.

Right Place, Right Time
It wasn’t until after their girls were grown that Hazel sought to continue volunteering as she did in Iowa. “Back in Iowa, I was somewhat involved in animal rescue, and I enjoyed that experience, and I wanted to do something here after the girls were gone from the house,” Hazel said. Her good works began at Dakota Hospital where she helped run the gift shop, and she said the experience was “just delightful.”

While working at the hospital, Hazel met two individuals who were instrumental in getting her involved with Heirlooms, an upscale resale store benefitting Hospice of the Red River Valley (HRRV). “I thought the whole concept of Heirlooms was just really neat,” Hazel explained. “Hospice was just getting the store started, and after listening to a presentation about the story of Hospice of the Red River Valley and their idea for Heirlooms, I just knew I had to help.”

Since the store’s inception in 2003, an upbeat, merry Hazel has greeted Heirlooms patrons at the front counter on Saturday afternoons, and even in her 80s, she wouldn’t have it any other way. “I look forward to my volunteering there, and I’ve never even thought about stopping,” she said. “I’m going to continue volunteering at Heirlooms as long as they’ll have me.”

Staffed by more than 70 volunteers, Heirlooms isn’t just a place of business to Hazel, but rather it’s a place with a wonderful atmosphere where she considers everyone as friends. She frequently sees familiar faces from the community. “I love the people there—both volunteers and shoppers, and I don’t consider what I do work because it’s such a pleasure,” Hazel described. “The other volunteers and the management staff are just wonderful.”

Something More
In early 2014, Hazel’s experience with Hospice of the Red River Valley deepened when her husband, Harold, began receiving care. For many years prior, Hazel looked after her husband who suffered from dementia, and when it was time for Hospice, Hazel welcomed the help. “I didn’t feel like the world was on my shoulders anymore; I didn’t feel alone,” she explained. “Even though my husband wasn’t on hospice care for very long, the Hospice staff was a great comfort and help to me and my family.” Hazel described his primary Hospice registered nurse as “kindness herself” and added the staff was always “very concerned with her husband’s care.”

Shortly after Harold began hospice care, he passed away, but Hazel remains grateful for the cares he received. “Now that I’ve seen the way Hospice helped our family, it’s all the more reason for me to continue supporting the organization,” she said. “I saw firsthand the kind of care people are receiving, and it’s so important because we’re all going to be there one day. I totally believe in Hospice.”

As the days go by and Hazel’s journey continues, she looks forward to the weekends when she works at Heirlooms. Smiling, Hazel added, “I feel great when I’m there and knowing that my work helps support such a wonderful organization that has given so much to others.”

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/06/30/a-brit-with-a-big-heart-one-volunteers-experience-with-hospice/

Jun 17

Join us on July 1 for the 2nd Annual Go Hawaiian for Hospice Luau Lunch

Go Hawaiian for Hospice 2014Choice Financial invites the community to the second annual “Go Hawaiian for Hospice” luau lunch!Go Hawiian for Hospice young girl

When: Tuesday, July 1 from 11 a.m. – 1:30 p.m.

Where: Choice Financial, 4501 23rd Ave. S., Fargo

For a suggested donation of $5, attendees will feast on a pig roast, French fries, fresh pineapple, Hawaiian punch and a frozen treat. In addition to delicious food, we’ll also have live music, raffle prizes, games, a memorial wall where you can remember a loved one and more! Make a donation of $25 or more, and Aartisan Fine Furniture Distinct Design will give you a $25 Maxwells gift certificate. All proceeds will directly benefit Hospice of the Red River Valley’s mission to provide comfort at the end of life’s journey.

Go Hawaiian for Hospice event organizers

 

Go Hawaiian for Hospice was founded in 2013 by Erv Inniger of Choice Financial. After witnessing firsthand the fundamental care provided by Hospice of the Red River Valley (HRRV) for a close friend, Norene Bunker, Erv was inspired to create a fundraising event. Erv, and a Choice Financial bank customer who had also experienced hospice care for several family members, rallied a team, and Go Hawaiian was created.

 

 Go Hawaiian for Hospice event volunteers

In its inaugural year, Go Hawaiian for Hospice event planners hoped to raise $10,000—the event surpassed all expectations and raised $20,000. The 2014 event fundraising goal is $30,000.

Please join us on Tuesday, July 1 at Choice Financial in Fargo for Go Hawaiian for Hospice!

Click to purchase an event ticket in advance, or visit the Go Hawaiian for Hospice Facebook event page.

Event Sponsors:

 

 

 

 

 

 

 

 

 

Special thanks to:
Master Construction, United Rentals, Nine Dragons, Comfort King, HOM Furniture, Mike Dragosavich of Spotlight Media, Paul Bougie of Spotlight Media, Indigo Signworks, the Fargo Fire Department, Corwin Automotive Group and Jim Elliot.

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/06/17/join-us-on-july-1-for-the-2nd-annual-go-hawaiian-for-hospice-luau-lunch/

Jun 03

Hospice Care: Creating Cherished Moments for Patients & Families

Hospice Care: Creating Cherished Moments for Patients and FamiliesIn May, the National Hospice and Palliative Care Organization (NHPCO) launched a new national campaign, “Moments of Life: Made Possible by Hospice,” aimed at educating those who are unfamiliar with the benefits of hospice care. The campaign focuses on sharing patient and family life moments made possible by hospices throughout the country.

Hospice of Red River Valley is thrilled this new campaign garners national attention and shares the news that hospice care provides opportunities to live a fuller and richer life to the end. With the assistance of our professional staff and dedicated volunteers, those under our care can focus on experiencing life’s moments, such as spending precious time with their families and fulfilling life-long dreams.

We share these stories through our website and this blog. We encourage you to read the stories and contact us to share your story—how you help create life moments for those receiving hospice care.

Learn more about the Moments of Life: Made Possible by Hospice campaign below in a public service announcement (PSA) and press release issued by the NHPCO.

NHPCO Launches New Moments of Life Campaign

Patients’ and families’ stories show hospice is about more than death – it’s about life

Alexandria, Va.—May 16, 2014—In celebrating the 40th anniversary of hospice care in the United States, the National Hospice and Palliative Care Organization is excited to introduce a new national campaign, “Moments of Life: Made Possible by Hospice,” that will show all Americans that hospice focuses on living and enables special moments and memories at the end of a life for patients and loved ones.

A father’s final wedding dance with his daughter; an afternoon concert with family and friends; the opportunity to bring an infant daughter home; an afternoon tea party with grandchildren… these are only some of the moments made possible by hospice.

The Moments of Life awareness campaign will feature stories gathered by hospices across the country of patients and families experiencing hospice care first hand. The stories will take the form of videos, photos, audio recordings and text and will offer a vibrant cross-section of different perspectives of hospice.

“In this campaign, we are looking for real stories that show patients’ abilities to ‘do more’ as a result of their experience on hospice,” said Anita Brikman, senior vice president of communications for NHPCO. “No matter what format is used, these stories should show America that even when you’re dying, there is still a lot of living to do.”

For many who have not seen hospice in action, it has become a common misconception that hospice patients are merely lying in bed, waiting for their end to come. For families who have experienced hospice, they see the focus is not on dying—it is about living as fully as possible. Hospice not only provides the highest quality care, it affords more moments, memories and opportunities.

“With the Moments of Life campaign, NHPCO is working with the entire hospice community to show that hospice helps patients obtain the end-of-life care they prefer at home, free of pain, surrounded by loved ones,” said J. Donald Schumacher, NHPCO president and CEO.

For more information, visit the new Moments of Life microsite at MomentsOfLife.org.

Contact:
Anita Brikman
NHPCO Senior Vice President, Strategic Communications
Ph: 703-837-3154

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Take Our Survey!
In an effort to better gauge our community’s understanding of hospice care, we created a survey. Participation is anonymous and should take less than 5 minutes. Thank you in advance for your participation! Click here to begin.

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/06/03/hospice-care-creating-cherished-moments-for-patients-families/

May 20

Heart to Heart: Hospice Staff a Precious Aid to a Patient

Caroline and JenniferMark Twain once said, “Praise is well, compliment is well, but affection—that is the last and final and most precious reward that any man can win, whether by character or achievement.” Certified Nursing Assistant (CNA) Jenny, at Hospice of the Red River Valley, has earned that ultimate prize—affection—from our patient, Caroline.

At age 89, Caroline was accustomed to taking care of things herself or with the help of her husband, who recently passed away. In October 2013, Caroline began receiving hospice care, and ever since then, she’s received not only exceptional care through Jenny, but has also found a friend. “I call her my Jenny,” Caroline explained. “She has a real spark of life in her. She has a full plate besides me, but you wouldn’t know it when she’s taking care of me.”

Jenny provides Caroline with basic cares, such as bathing and hair washing, but she also is careful to leave a little time for special things like painting Caroline’s nails or chatting over a cup of coffee. “It’s the extra small things that add up for someone,” Jenny said. “I so enjoy the time I spend with Caroline.” Jenny has worked as a CNA with Hospice of the Red River Valley for five years and has formed a real bond with pleasant, easygoing Caroline. “Patients like Caroline make my work so much easier,” Jenny explained.

Anyone who has spent a little time with Caroline and Jenny together can see it—the undeniable connection the two share, building such a rapport with one another, it’s like they’ve known each other for years.“I have up and down days, but she’s given me such wonderful help,” Caroline said. “Jenny’s my right arm, and I couldn’t survive without her.”

The cares Jenny provides are precious to Caroline, just as the entire hospice experience has been for her. Caroline said hospice care is more than she expected. “Hospice takes a real interest in you,” she described. “I’ve had people just stop in on their way to visit someone else, and I think it’s so nice Hospice takes the time to do that. You know you’re in good hands,” Caroline said.

In addition to “her” Jenny’s help, Caroline’s oldest son, David, also provides support. “He usually has coffee and a sandwich out for me,” Caroline said. “He’s helped me so much.” David is one of four children—three sons and one daughter—Caroline raised in the house she and David now reside in.

“I just love it when my Jenny comes to visit,” Caroline said with a smile. “She’s the best, and I look forward to it.”

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/05/20/heart-to-heart-hospice-staff-a-precious-aid-to-a-patient/

May 06

When’s the Right Time to Ask about Hospice?

Roxanne SmedsrudBy Roxanne Smedsrud, RN, CHPN

It’s a Common Situation
One afternoon I was visiting with my friend, Valerie, and she began telling me about her grandpa, George, who was recently diagnosed with colon cancer at age 94. He lived in a nursing home in Fargo, but the last year found him in and out of the hospital on several occasions. Valerie talked about the toll hospital stays and moving from place to place took on George. Her mom was also exhausted from taking him to continuous doctor appointments and tests.

With a feeling helplessness in her voice, Valerie said she didn’t know what she could do to make the situation better for either of them. I asked her if anyone talked with her or her family about hospice, and Valerie said she often wondered about hospice, but since hospital and nursing home staff never broached the subject, she thought her grandpa wasn’t quite ready.

You’re Not Alone
As I listened, I couldn’t help but think of how many other families might be struggling with the same issues related to the decline of a loved one. The same people, like Valerie, who were waiting for a doctor or nurse to start the discussion about hospice.

Valerie expressed her hesitation with being the person to start the hospice conversation in her family. Would her family think she was giving up on grandpa? As for Valerie, she didn’t want to give up, but she also didn’t know the next step.

I gently explained to her that hospice care does not mean you’re giving up, rather, it means comfort and quality of life for a loved one by allowing the person to live their last days in their home—wherever that may be—surrounded by their loved ones and caregivers.

A Change of Heart
After our conversation, Valerie talked with her mom and the rest of the family about hospice care for George. Everyone agreed they wanted to learn more about hospice services, and the next morning a hospice nurse met with Valerie and her mom at the nursing home. Later in the day, Hospice of the Red River Valley admitted George to receive hospice care.

He was only on service for slightly more than two weeks when he died peacefully and comfortably, surrounded by his family. Even though he only received hospice care for a few days, it was easy to see the benefit Hospice provided, not only to George, but also to his family. Imagine the additional cares George could have received if Hospice was involved for the last six months of his life, instead of the just final weeks.

The family felt such a sense of relief that their beloved George didn’t have to spend anymore time in the hospital. Hospice, in collaboration with the nursing home staff, provided everything George needed at the nursing home, making the experience smoother for both George and his family. The combination of nursing home long-term care experts and Hospice of the Red River Valley end-of-life care experts meant George received high-quality comfort care while he spent his last days with his loved ones at his side.

Looking Back
I didn’t see Valerie until a couple of months after her grandpa’s funeral. When we did connect, she expressed her thankfulness for all the wonderful care her grandpa received from Hospice of the Red River Valley. Her only regret was not unlike what we hear from so many of our patients’ families … “I wish we would have known about Hospice sooner so we could have taken full advantage of the care and support they offer.”

If You’re Not Sure, Ask
So, when someone asks me, “When is the best time to ask about hospice?” I say, the sooner the better. Our staff visits with families at any time, free of charge and obligation—even if you’re unsure it’s the right time for hospice care for you or your loved one. You might be surprised by the piece of mind an upfront conversation about end-of-life wishes can offer, not just for the patient but also for the patient’s loved ones. If you have questions about hospice care, reach out to Hospice of the Red River Valley or ask your doctor. Understanding the options will allow you to make the best informed decision about your or your loved one’s end-of-life care.

Editor’s note: Names have been changed in the story to respect privacy.

Roxanne Smedsrud is a clinical education specialist at Hospice of the Red River Valley.

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/05/06/whens-the-right-time-to-ask-about-hospice/

Apr 22

It Takes All Kinds: An Unexpected Hospice Volunteer

Steve SmedshammerVibrant, colorful tattoos cover Steve Smedshammer’s arms. Oversized, exaggerated earrings stretch his earlobes. A scratchy beard covers his face. By appearance alone, some might label Steve a hipster, or alternative. Few might be surprised to learn he plays guitar in a metal band. But, Steve is so much more than what meets the eye.

You don’t know by looking that Stevo, as he prefers to be called, is a recent pre-med graduate of Concordia College. At age 30, he and his new bride are expecting their first child. Between attending school, working full-time and playing in two bands, he also regularly volunteers his time at local non-profit organizations, including Hospice of the Red River Valley.

“It’s not something I advertise,” Stevo said, humbly. “And, it’s not something I do just to put on my resume.” He believes by getting involved, and having well-rounded experiences, the “payouts” are exponential.

Stevo was introduced to Hospice of the Red River Valley while attending Concordia College. There, in his Biomedical Ethics class, a speaker from Hospice addressed the class. “I thought, to be a volunteer, you had to have certain prerequisites or medical background,” Stevo shared. “When I learned I could join an organization and immediately make a contribution, I was sold. I knew that same day I would apply as a volunteer.”

While some people are intimidated by the idea of being a hospice volunteer, Stevo quickly relaxed into the role. He made an instant connection with his first patient, Joe*. They bonded through a shared love of music and spend their visits listening to Johnny Cash, Patsy Cline and “Americana” style music. “Joe asked me to sing to him once, but after years of scream-singing in a metal band, he hasn’t asked again,” Stevo said with a laugh.

As a musician who plays 16 instruments, including guitar, accordion, ukulele, cello, melodica and more, Stevo was the just person to help Joe achieve his goal of learning how to play guitar before he died. And so they began lessons. When the guitar became too much for Joe to handle, they switched to ukulele.

“Joe almost nailed a three minute song. It was so rewarding to see him pull it off,” Stevo described with a smile, recalling a favorite moment with his new friend. “He’s normally pretty self-deprecating, but after that song, he actually complimented himself. That was a proud moment for both of us. We celebrated with a high-five.”

Whether strumming his guitar and chatting, or sitting at a bedside during a Pathway visit, Stevo is a natural.

“When we received Stevo’s application and spoke with him, it was obvious to us that he has a wonderful, giving spirit,” Deb Kluck, manager of clinical development – volunteer services, said. “Stevo is not our ‘typical’ volunteer, and we’re thrilled about that. We need all types of people to help make our patients’ end-of-life experiences fulfilling. Variety is the spice of life, even at the end of life.”

“Most people think they could never be a hospice volunteer. I think if more people gave it a try, they’d be surprised,” Stevo explained. “If you enjoy talking with your grandpa, grandma, parents, aunts or uncles, having a conversation, just being present with people, you can be a hospice volunteer. It’s not bleak; it’s actually an overwhelmingly positive experience.”

Being a hospice volunteer has given Stevo a new perspective on life and an enhanced appreciation for his health. Volunteering with Hospice has also taught him a lot about time. “Sometimes you just need to be still, sit down and savor the quiet moments,” he explained. “People don’t just sit anymore.”

For Stevo, the rush of helping someone else is addictive. He recalls, his grandmother was cared for by Hospice, and he remembers her nurse as “the lighthouse in the storm.”

“Sometimes, just knowing someone else cares, outside of the family, can be comforting,” Stevo said. “I can do that.”

*Please note: The patient’s name has been changed to protect his privacy.

At Hospice of the Red River Valley, we are fortunate to have many dedicated volunteers. We celebrate their contributions to the organization. Click to find out more information about our volunteer program and how to apply.

Permanent link to this article: http://hospicerrvblog.areavoices.com/2014/04/22/it-takes-all-kinds-an-unexpected-hospice-volunteer/

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